An honest look at a life with disease… I have a reputation of being very private about the way this disease affects my life. I own a water bottle that reads “I have MS, but MS does not have me” and although I am not a fan of advertising my attempt to use positive thinking […]
My doctor has taken a rather aggressive approach to my MS treatments. He’s basically anti-lesion, so it seems whenever he sees new lesions on my MRI, that’s the end of the road for whatever “therapy” I was currently on. Now, it’s important to mention I’m a terrible patient. I’m only as involved in the decision […]
When our children were much younger, we had a large collection of pets of various kinds ranging from small caged critters to larger animals, such as llamas and goats. For my own well-being we’ve scaled down A LOT, and for the last five years or so I’ve confidently declared “NO MORE CAGED ANIMALS!”, because although […]
January 8, 2018 It’s safe to say I get emotional when I’m sick. Tears rolled off my cheeks and wet my hair and pillow. How could this be happening all at once, and how could it be happening to me? I’m already feeling so weak and limited; how could God allow an increase of challenges […]
There comes a time in everyone’s life when they have to decide it’s okay to take the easier route, plus some shortcuts for the sake of one’s mental and physical well-being. In my case, I have made a lifelong journey out of doing things the hard way; or the long way; or the complicated way; […]
Anyone who knows me is well aware that when I get quiet, things are not right. I sat on this for a long time. It’s probably been in the making for over a month. But that’s what I do, that’s what living a life unhealthy does; it’s a roller coaster. I have dozens and dozens […]
Shhh…It’s okay, let change happen For the second time in just under a month, the weariness and gloom has subsided…again. Brief as it may be, I’m cherishing it. Its intention was to keep me from action, and unfortunately it was somewhat successful. Articulating how I have been feeling is like explaining the logic in ping-pong […]
As he told me that he understood, I knew he didn’t. How could he? Lack of sleep likely doesn’t change his speech, change his thinking, but I’m sure he fully believed he understood. It’s too much work, and a little humiliating, to explain to a person, “No, really, trust me, you don’t get it, and […]
When I recognize someone is merely asking because they know they should ask, but hardly appear to care to listen to the answers they sought, I say as little as possible and quickly try to protect myself from sharing this private and personal information with someone who is crushing my trust with their lack of interest.
After forty years on this earth, and dozens of bee stings under my belt, apparently all of a sudden, out of nowhere, I am allergic to bees. Shortly after I completed my last post, it was getting late, so I began my nightly bedtime rituals. My husband was already asleep with the lights off so […]
It’s a lot easier to get honest with ourselves and slow down when limitations are a constant reminder of what’s most valuable to us.